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My Stories

BAND OF PARENTS, Let’s Unite

It’s quiet over here. In your time it would still be VERY busy. Quiet here is blood transfusions, fevers, medicines galore, and stretches...

Hello clock.

You like the rest of this cage I know well. I could draw all of you with my eyes closed. But you, I know the best, as I stare at your...

He’s the best of all of us

We are back in the hospital. It is day 9. Just like last round. Day 9. Fever. And poor Jacob. This was his day “off.” A day he didn’t...

Glass Planes

Benno builds glass planes in his head. We are laying in bed and he is telling me about them. Everything is glass. The floor is glass, the...

A night with Dave

Imagine having Dave Chappelle in your living room just talking to you. Just talking. Hearing about his life, his understandings, and its...

I just wish more for them

The honeymoon is over. I am honestly amazed it lasted that long. The novelty of the hospital and all of this attention is no longer novel...

Our Anniversary

Last night was our anniversary. I know in your time it was July 21st, but it was July 24th in our time. We decided it was our...

Dear Anderson,

I hope it’s okay I call you that. Mr. Cooper felt a bit formal. So we finally meet. I’m the girl sitting one seat in front of you at the...

I showed him the door

Benno came home. He came home in a mood. He wanted to speak to me in private. He wants to be homeschooled. This is a new one. Add it to...

I edet. I edit.

I know they are long. Very long I READ them. Remember, I read them? I write them for me. They are for me. I am taking notes. I am trying...

Hunkering

People ask how we are doing? Where are we? How are we? Answer to all of these question is “hunkering.” We’re hunkering down. We are in...

What if

I’ve been thinking a lot about why all the “cutting.” The cutting each other down. Why we spend our days fighting each other? Why we...

Beauty is in the eye of the beholder

Dear Dad, I heard you are having a hard time with this all. And now I know after speaking to you. I know that it makes you question...

Karma

We have an additional family member. We actually have many. Every nanny/ housekeeper, etc has run back to our family. Some have even...

Certaining

You all pushed. Do something for you for your “birthday.” It will be good for you. So I did. I left the hospital and did something for...

Best text

Best text ever. And from the words of an eight year old. “Hi Jacob,I want you to be happier“ Thank you Henri Jacob hasn’t seen it yet,...

This is very much still on!

Thinking about next year a lot. Thinking about living my best life. Scratch that. I was living my best life, now I’m going to lead OUR...

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