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My Stories

Thank you teachers

A note of deep appreciation to all of Jacob’s morahs, profes, and teachers that have come to his bedside. Each of you have come. Today...

Flick

Today we met with the surgical team. I was looking forward to it (that’s not the right words), but I felt that this was a milestone. A...

The news

The news somehow gets to me. It is hard to ignore your world as the tragedies are so loud. I heard about two mass shootings. That is all...

What is with the Ghi?

Why the Ghi? Was Benno’s question. We have given Benno choice over his day. He doesn’t have to go to camp, but he has to do something....

Fire

Shabbat Shalom It is Friday night and I’m alone. I swapped out of the hospital. Steve is there now. I came home to rest. Jacob doesn’t...

My pickup truck

I finally drove my car. Right before Jacob’s diagnosis, I got a new car. I bought myself a pickup truck. This is an odd choice as I don’t...

Today is one, an important one.

Today is one. And not just any “one,” its an important one. Today we start the count. It is the third round of chemo and like everything...

Dear Mike Rowe,

Dear Mike Rowe, Sorry to be formal, but you will always be Mike Rowe. Calling you Mike just feels wrong. You’re Mike Rowe! And this name...

An odd request

I asked to stop because I want to swim. We are not prepared to swim. Actually, that is not accurate. I am not prepared to swim. Steve is...

Faster!

I begged Steve to “switch” as my head was throbbing. Jacob only wants me and its not a “mama” sweet snuggle moment, it’s SCREAMING,...

Dear Justin,

I didn’t plan on writing to you. I just asked Steve to hand me a computer so I could write down a happy memory so I could read it later....

We’re trying

We really are trying. We really are. We want to make lemonade out of our lemons. We want to be a family again. We want to be happy. We...

To remind us of days long ago

There is no physical police baton. I’m sorry for getting you excited. Sorry. I only wrote the memory down which is months old. I wrote it...

Baton

It started with a pen. When we met, Steve always had a certain pen on him. It was a fancy looking pen, it had weight to it. And he always...

We take Apple Pay

I got a text when Jacob was the sickest we have seen him. I couldn’t really enjoy it. I was just so down that the differential in my...

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